IMAGINE THIS — you’ve just welcomed your beautiful baby into the world, your perfect little bundle of joy. You’re wrapped in a haze of happiness, hormones, and the relief that the hardest part is behind you. But then, something starts to feel off. Your baby always appears to be sleeping. You realise… you haven’t seen their eyes. You don’t even know what colour they are.
The doctors might reassure you by saying there’s no need to worry — everything is fine. They may explain it’s simply due to the summer season, the brightness, and that it will all work out in the end.
But as the weeks and months go by, your baby still barely opens their eyes. What can you do?
STEP 1 – CONSULT YOUR PEDIATRICIAN
At your child’s next checkup, speak with your local pediatrician about your concerns. Keep in mind that if the condition is Blepharophimosis Ptosis Epicanthus Inversus, they may not be familiar with it, as it is extremely rare. If they’re unsure or unable to provide a diagnosis, you’ll need to seek advice from a specialist.
STEP 2 – FIND A PRIVATE SPECIALIST
Try searching for a private pediatric ophthalmologist in your area—they are more likely to recognize and diagnose the condition. If you’re still unable to get answers, consider booking an online consultation with Dr. Ramón Medel, a specialist based in Málaga, Spain. His website is https://ramonmedel.com/ business whatsapp number is 0034 616 530 935.
STEP 3 – GET YOUR DIAGNOSIS AND DECIDE NEXT STEPS
Once you know what condition, if any, your baby has, you can learn more about it, and your options. You may find the videos on our YouTube page helpful – find them here – https://www.youtube.com/@throughoureyescharity. There are many Facebook groups you can join. You can also reach out to us directly if you have questions or need some advice.
Finally, try not to panic or get too upset – there are thousands of other families that have been through this and live a happy life. There is support available and light at the end of the tunnel.